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Humira - 1st injection next week and scared Options
volfram
#21 Posted : Thursday, November 17, 2011 10:31:31 PM Quote
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Hi Val,
Well done and here's hoping for some good results.
sue v xx
flw93
#22 Posted : Thursday, November 17, 2011 10:37:28 PM Quote
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Hi Val

I have had my second injection today and it went fine. I have been told it takes up to 12 weeks to see any improvement. I will let you know how I get on as we are both at the same stage.

Louise
ladygolfer
#23 Posted : Thursday, December 01, 2011 7:14:30 PM Quote
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Just a little update - I have had my 2nd Humira injection and this was totally different to the 1st one. It really hurt and stung quite a lot. Does anyone know if this is normal for 2 injections to be totally different. I did take it out of the fridge half an hour before. Trouble is I will be anxious next time.

Regards

ValHuh
jenni_b
#24 Posted : Thursday, December 01, 2011 8:43:49 PM Quote
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Hi val

mine hurt when I was trying the humira...

First off you could have been near a nerve- even my painless insulin jabs hurt like anything when I catch a nerve.

Secondly- go in at the same angle that didnt hurt last time

try taking paracetamol 20 mins before hand and and numbing the area with some ice.

People I know who were awfully sore at the start have got used to it and it now hardly notices.

Jenni xx
how to be a velvet bulldoser
LynW
#25 Posted : Friday, December 02, 2011 2:34:40 AM Quote
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Hi Val

It does take time to find what works for you. Once you find the right angle and a suitable spot it will become less painful. Must admit I got to a point where I didn't even change sides (as recommended) and I could inject without pain, soreness or hitting a nerve every time! Only snag is one can become a little blase, and then ... ouch! Scared Do take pain rellief as jenni suggests, it does help!

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

dorat
#26 Posted : Friday, December 02, 2011 10:38:49 AM Quote
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Hi Val,

When I used the syringe the injections did not hurt at all, but with the pen I find it hurts every time, and really stings afterwards.
It only lasts a few seconds though and I am used to the stinging pain so I just grin and bear it!
Good luck with the humira, hope it works well for you.

Doreen xx

JulieM
#27 Posted : Saturday, December 03, 2011 1:00:22 PM Quote
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Also, don't push the pen in too hard on your skin. You will find an area that suits you, mine is slightly lower down than the nurse showed me. I know it's a cringing moment but I just grit my teeth grimace and it only lasts for 10 seconds!
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
ladygolfer
#28 Posted : Wednesday, December 14, 2011 8:07:28 PM Quote
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Dear All
Just another setback. My latest blood tests show that my white blood cell count is down. This is after only 2 HUMIRA injections. The rheummy nurse has stopped all treatment until they get some more blood test results. Obviously I am very upset and can only hope I get back on track before Christmas.

Regards

Val
PS Thank you for all the replies I have had regarding this thread - Thank YouSad
sheila_G
#29 Posted : Thursday, December 15, 2011 10:24:20 AM Quote
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Oh Val. This must be a great disappointment to you. Is it definitely because of humira (I don't know much about this drug.) My thoughts and prayers are with you.

Sheila x

dorat
#30 Posted : Thursday, December 15, 2011 10:40:57 AM Quote
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That's disappointing for you Val.
Hope it's not long before you can get back on the meds.

Doreen xx

JulieM
#31 Posted : Thursday, December 15, 2011 1:58:14 PM Quote
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Oh no Val Sad
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
ladygolfer
#32 Posted : Saturday, December 17, 2011 8:57:45 AM Quote
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I have now got another setback. I have had numersous uti's over the last 2 years. I have just been diagnosed with the pseudomonas bug. All medication stopped until I get rid of it. I have had a special antibiotic and I dont think it has cured it. According to the internet this is a nasty bug which can be resistent to antibiotics. I am just waiting for the results of my urine sample taken 1 week after finishing the antibiotics, however I have been testing it myself and I think it is still there. I am so upset that I cant sleep properly and wonder just where I go from here on both the rheumatoid front and the uti. Has anyone else had this bug and if so how did you get rid of it. I suspect I have had this for 2 years.

Val
dorat
#33 Posted : Saturday, December 17, 2011 11:09:00 AM Quote
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Oh Val, I'm so sorry to hear this. You have had one setback after another and it's no wonder you are upset.
I hope they can get rid of the bug for you and you can get back on the drugs soon.
Have you thought of ringing the NRAS helpline? They may be able to get you some advice from one of their medical advisers.

Love Doreen xx

Kathleen_C
#34 Posted : Saturday, December 17, 2011 7:40:54 PM Quote
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Oh, that`s not good news Val - I`m so sorry. I had a few UTIs when I first began taking humira, but then they seemed to disappear. I`ve never heard of the bug you mention, but hope you can soon get rid of it and get back onto some medication.

Take care,

Kathleen x

JulieM
#35 Posted : Sunday, December 18, 2011 10:20:51 AM Quote
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I've never heard of this bug either Val. You certainly are having it heaped on you right now aren't you?
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
sheila_G
#36 Posted : Sunday, December 18, 2011 12:23:35 PM Quote
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Oh Val. You poor love. I haven't heard of this bug either. You must be feeling really down right now. I know you need to get the bug sorted and back on meds for RA asap but Doreen's suggestion of ringing the NRAS helpline is a good one and one you should take up. You need someone to talk to right now and they are wonderful. Don't hesitate, just ring them in the morning. Good luck. Lots of love.

Sheila x
Rose-B
#37 Posted : Sunday, December 18, 2011 10:31:45 PM Quote
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Hello Val

Just to say I understand how you much be feeling and am thinking about you.

Rose
ladygolfer
#38 Posted : Monday, December 19, 2011 10:28:41 AM Quote
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Thanks you so much for all your replies, I am still waiting to see if the latest sample is clear, if not RA treatment will still be on hold over Christmas. My cup is still half empty at the moment, but grateful for your replies.

Val
ladygolfer
#39 Posted : Monday, December 19, 2011 5:48:25 PM Quote
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Good News my sample has come back clear and my latest blood tests are OKay so I am back on track and will have mtx tomorrow and HUMIRA on Thursday, cant believe it has all come right for Christmas.

Regards ValSmile
JulieM
#40 Posted : Monday, December 19, 2011 6:12:55 PM Quote
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YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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